Nephrotic syndrome

Nephrotic Syndrome, what is that you may ask. That might have never even came to mind and I understand why, 1 in 3,000,000 get this chronological disease. But now to explain what this is, Nephrotic syndrome all starts with a tiny cell in your blood called C3NF when it activates your immune system. It may not sound bad but once the immune system is activated it starts attacking someone thing and that something is your kidneys. The immune system uncontrollably starts going at it with your kidneys causing damage making them release liquid into your body causing you to swell up. And if not checked out your kidneys could have permanent damage, this could lead to kidney failure and sometimes death. You may ask why is he talking about this, because I’ve been battling with this disease since March of 2020.  

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It’s been scary, frustrating, depressing, and anxious. Every time I went to the doctor it was like I went to get bad news it got worse and worse. In June of 2020 it got to a point where I gained 40 pounds in nothing but liquid. You couldn’t even recognize my face. The only thing that could help were steroids and not even that helped me out. Last check up I had in September 23, 2020 was when my mother got one of the hardest pills to swallow. The doctor said nothing was working and we would have to make the decision of picking this medication that would have a 50% chance it works or a 50% it doesn’t and I get meningitis. If you’re asking what that it, it is the start of your brain getting swollen which in a lot of cases leads to death. Next check up is November 23, 2020, 5 days before my birthday, and depending on how labs go, we either chose that med or we don’t.

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One thought on “Nephrotic syndrome

  1. Thank you for sharing this out with us, this is really important information for many of us out there. It’s important to learn from other peers.


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